Rare epilepsy form Three-year-old infant had to be resuscitated more than 20 times

Rare epilepsy form Three-year-old infant had to be resuscitated more than 20 times / Health News
Rare Epilepsy Form: Mother had to revive daughter over 20 times
A 25-year-old mother in the UK had to revive her three-year-old daughter more than 20 times. The girl suffers from the so-called Dravet syndrome, a rare form of epilepsy that causes seizures, which must be stopped as quickly as possible by a doctor giving intravenous medication. Vaccinations are considered as a possible triggering factor.


Daughter more than 20 times resuscitated
According to British media, 25-year-old Samantha Slocombe and her husband Michael from southwestern England have had to revive their three-year-old daughter Paige over 20 times. The little girl suffers from the so-called Dravet syndrome, a rare and severe form of epilepsy.

A mother in the UK has had to revive her three-year-old daughter over 20 times. The girl suffers from "Dravet Syndrome", a rare form of epilepsy. (Image: Tobilander / fotolia.com)

Epileptic seizures in first healthy child
In this type of epilepsy, an initially healthy child experiences epileptic seizures during the first year of life, which are usually triggered by fever. They often involve violent rhythmic twitching of the muscles of the arms, legs and face and / or stiffening of the limbs and trunk, coupled with unconsciousness, "writes the North German Epilepsy Network on its website.

Vaccinations as a possible trigger
The cause could be detected in many children, a mutation in the SCN1A gene. But vaccinations are also considered as a possible triggering factor. Only a few months ago, the Bavarian State Social Court (LSG) in Munich first approved Dravet Syndrome as vaccine damage.

In seizures, which can often last over 20 minutes, even emergency medications do not always succeed, so that often an emergency medical intervention is necessary. So also with the little Paige.

First seizure at seven months
The first attack occurred with the girl when she was seven months old and was bathed. "I had no idea what was going on," her mother said, according to a report by the British "Mirror". "I've never seen a seizure. I thought she had to die. "That same night in December 2013, the girl suffered another seizure that lasted over an hour.

She had to go to a hospital. "That was terrible to look at. I was so panicked and physically ill, "the mother recalled. Only after five days she was able to leave the clinic with her child.

Parents find their daughter lifeless and deathly pale
It did not get better. About two months later, Samantha Slocombe heard "strange noises" and found her daughter "lifeless, with blue lips and deathly pale" in her crib. According to the newspaper report, the parents succeeded in reviving little Paige. It should not be the last time.

At the hospital, doctors finally diagnosed Dravet syndrome and equipped their parents with resuscitation equipment that they have been carrying anywhere, ever since. In addition, they must comply with their daughter a special nutrition plan. How the disease will develop, according to experts initially unpredictable. (Ad)